How do you treat ectodermal dysplasia?
There is no specific treatment for HED. The condition is managed by treating the various symptoms. For patients with abnormal or no sweat glands, it is recommended that they live in places with air conditioning at home, school and work.
Is ectodermal dysplasia contagious?
What causes ectodermal dysplasia? Ectodermal dysplasia is the result of a genetic mutation passed from parent to child. In some cases, the genetic mutation occurs spontaneously in the person who has the condition. The ectodermal dysplasias are not contagious.
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What are the different types of ectodermal dysplasias?
Ectodermal dysplasias are a large group of heritable conditions characterized by congenital defects of one or more ectodermal structures and their appendages: hair (hypotrichosis, partial, or total alopecia), nails (dystrophic, hypertrophic, abnormally keratinized), teeth (enamel defect or absent), …
What can a registry do for Ectodermal dysplasia?
A registry supports research by collecting of information about patients that share something in common, such as being diagnosed with Ectodermal dysplasia. The type of data collected can vary from registry to registry and is based on the goals and purpose of that registry.
How to tell if you have Anhidrotic ectodermal dysplasia?
Anhidrotic ectodermal dysplasia 1 Fingernails and toenails may be thick, abnormally shaped, discoloured, ridged, slow-growing, or brittle 2 Sometimes nails may be absent 3 Cuticles may be prone to infection
What are the tissues of the ectoderm that are affected?
Ectodermal dysplasia (ED) is one of the rare hereditary disorders that demonstrate primary developmental defects of two or more tissues derived from the ectoderm. Primarily affected tissues are the skin, hair, nails, eccrine glands, and teeth.